Artiklar och rapporter

Rapporter och sammanställningar av konferenser och utredningar utgivna av olika myndigheter och organisationer

Socialstyrelsen (2000). Anhöriga till äldre som flyttar till särskilt boende (Anhörig 300; 2000:3).  Stockholm: Socialstyrelsen.

Artiklar och rapporter sorterat efter författare

Agren Bolmsjo, I. (2008). End-of-life care for old people: a review of the literature. American Journal of Hospice & Palliative Medicine, 25(4), 328-338.

Ahlner-Elmqvist, M., Jordhøy MS, Bjordal, K., Jannert, M., Kaasa, S. (2008). Characteristics and quality of life of patients who choose home care at the end of life. Journal of Pain & Symptom Management, 36(3), 217-227.

Albinsson, L. (2002). A palliative approach to dementia care : Leadership and organisation, existential issues and family support (Comprehensive summaries of Uppsala dissertations from the faculty of medicine, 0282-7476 ; 1196). Uppsala: Acta Universitatis Upsaliensis.

Almberg, B. E., Grafström, M., & Winblad, B. (2000, February). Caregivers of relatives with dementia: Experiences encompassing social support and bereavement. Aging & Mental Health, 4(1), 82-89.

Allen, R. S., & Hilgeman, M. M. (2009). Helping people with dementia approach the end of life: issues for families. Generations, 33(1), 74-77.

Andersson, A., Medborg, P. (2008). Det goda boendet : En kvalitativ studie av anhörigas upplevelse av kontaktmannaskap och individuell målplan. Kand. Örebro: Örebro Universitet.

Andersson, M. (2010). Ett besök på Trädgårdsgatans äldreboende - en anhörig reflekterar. In M. Abramsson (Ed.), Rum för Åldrande - Essäer om äldres boende (pp. 50-55). Norrköping: Nationella institutet för forskning om äldre och åldrande (NISAL).

Andersson, M., Ekwall, A. K., Hallberg, I. R., & Edberg, A. K. (2010). The experience of being next of kin to an older person in the last phase of life. Palliative and Supportive Care, 8(1), 17-26.

Andersson, M. (2007). Äldre personers sista tid i livet : Livskvalitet, vård, omsorg och närståendes situation (Bulletin från Institutionen för Hälsa, Vård och Samhälle, medicinska fackulteten 26). Lund: Lunds Universitet.

Andrén, S., Elmstahl, S. (2008). Effective psychosocial intervention for family caregivers lengthens time elapsed before nursing home placement of individuals with dementia: a five-year follow-up study. International Psychogeriatric, 20(6), 1177-1192.

Aoun, S., Bird, S., Kristjanson, L. J., & Currow, D. (2010). Reliability testing of the FAMCARE-2 scale: measuring family carer satisfaction with palliative care. Palliative Medicine, 24(7), 674-681.

Bechelet, L., Heal, R., Leam C., Payne, M. (2008). Empowering carers to reconstruct their finances. Practice, 20(4), 223-234.

Benzein, E., Saveman, B. (2008). Health-promoting conversations about hope and suffering with couples in palliative care. International Journal of Palliative Nursing, 14(9), 439-445.

Benzein, E., (2008). I rörelse mot hopp - hälsostödjande familjesamtal i palliativ vård. Omsorg: Nordisk Tidsskrift for Palliativ Medisin 25(3), 19-22.

Bezkow, J. (2008). När himlen är nära ... Att samtala med äldre om liv, död och självmord. Psykisk hälsa, 49(3), 35-42.

Bezkow, J. (2007). När himlen är nära- : samtal med svårt sjuka och äldre samt deras närstående, vårdare och efterlevande. Stockholm, SPES.

Boerner, K., & Schulz, R. (2009). Caregiving, bereavement and complicated grief. Bereavement Care, 28(3), 10-13.

Boij, A. (2007). En meningsfull ålderdom : undersökning i Skövde kommun av äldres tankar kring boende, omvårdnad och IT-teknologi. Rapport 2007:6. Tranås: A. Boij AB - Idé- och produktutveckling.

Brobäck, G., & Berterö, C. (2003, Dec). How next of kin experience palliative care of relatives at home. European Journal of  Cancer Care, 12(4), 339-346.

Brovall, C., Hanson, E., & Magnusson, L. (2004). Mål och policy vid palliativ vård och vård i livets slutskede för äldre och deras närstående i Tranemo : Ett gemensamt synsätt. (Rapport). (Vol. 1). Borås: ÄldreVäst Sjuhärad, Högskolan i Borås.

Brännström, M., Ekman, I., Boman, K., & Strandberg, G. (2007, Sep). Being a close relative of a person with severe, chronic heart failure in palliative advanced home care--a comfort but also a strain. Scandinavian Journal of Caring Sciense, 21(3), 338-344.

Bygeus, R. & Persson, A. (2008). Anhörigas erfarenheter av information och stöd i samband med palliativ cancervård. C-uppsats. Kalmar: Högskolan i Kalmar.

Cohen, C. J., Auslander, G., & Chen, Y. (2010). Family caregiving to hospitalized end-of-life and acutely ill geriatric patients. Journal of Gerontological Nursing, 36(8), 42-50.

Cronfalk, B. S., Strang, P., & Ternestedt, B. (2009). Inner power, physical strength and existential well-being in daily life: relatives' experiences of receiving soft tissue massage in palliative home care. Journal of Clinical Nursing, 18(15), 2225-2233.

Dahlstrand, H. (2008). Disclosure of incurable illness to spouses: Do they want to know? A Swedish population-based follow-up study (vol 26, Pg 3379, 2008). Journal of Clinical Oncology, 26(25), 4229-4229.

Dahlstrand, H., Hauksdóttir, A., Valdimarsdóttir, U., Fürst, C. J., Bergmark, K. & Steineck G. (2008). Disclosure of incurable illness to spouses: do they want to know? A Swedish population-based follow-up study. Journal of Clinical Oncology, 26(20), 3372-3379.

Davis, J. D., Tremont, G., Bishop, D. S., & Fortinsky, R. H. (2011). A telephone-delivered psychosocial intervention improves dementia caregiver adjustment following nursing home placement. International Journal of Geriatric Psychiatry, 26(4), 380-387.

Davies, S., & Nolan, M. (2006, Mars). 'making it better': Self-perceived roles of family caregivers of older people living in care homes: A qualitative study. International Journal of Nursing Studies, 43(3), 281-291.

Diwan, S., Hougham, G. W., & Sachs, G. A. (2009). Chronological patterns and issues precipitating grieving over the course of caregiving among family caregivers of persons with dementia. Clinical Gerontologist, 32(4), 358-370.

Docherty, A., Owens, A., Asadi-Lari, M., Petchey , R., Williams, J. & Carter , Y. H. (2008). Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review. Palliative Medicine, 22(2), 153-171.

Dwyer, L-L. (2008). Dignity in the end of life care : what does it mean to older people and staff in nursing homes? Diss. Örebro: Örebro universitet.

Dubus, N. (2010). Who cares for the caregivers? Why medical social workers belong on end-of-life care teams. Social Work in Health Care, 49(7), 603-617.

Eloniemi-Sulkava, U., Rahkonen, T., & Suihkonen, M. (2002, November). Emotional reactions and life changes of caregivers of demented patients when home caregiving ends. Aging & Mental Health, 6(4), 343-349.

Engström, B. & Hedström, V. (2007). Äldre personers upplevelse av att bli ensam efter förlust av partner [Elektronisk resurs]. Luleå: Luleå tekniska universitet/Hälsovetenskap/Omvårdnad.

Eriksson, H., & Sandberg, J. (2008). Transitions in men's caring identities: Experiences from home-based care to nursing home placement.(report). International Journal of Older People Nursing, 3(2), 131(137).

Eriksson, M. & Andershed, B.  (2008). Care dependence: a struggle toward moments of respite. Clinical Nursing Research, 17(3), 220-36.

Eriksson, M. & Svedlund, M. (2007). Upplevelser hos äldre närstående i samband med partners dödsfall - en litteraturöversikt. Vård i Norden, (1), 43-46.

Ernsth, Bravell, M. (2007). Care trajectories in the oldest old. Diss. Jönköping: School of Health Sciences, Jönköpings University.

Ewing, G., Grande, G., & Payne, S. (2010). Carer support needs assessment in end of life home care: developing a tool for routine practice. Palliative Medicine, 24(2), 211-211.

Ferm, M. (2008). När himlen är nära- : till samtalsledare som leder "När himlen är nära-grupper". Stockholm: SPES.

Ferm M, Beskow J. (2008). Att våga vara nära. Tidningen Äldreomsorg. (6), 48-51.

Fisker, T., & Strandmark, M. (2007). Experiences of surviving spouse of terminally ill spouse: A phenomenological study of an altruistic perspective. Scandinavian Journal of Caring Science, 21(2), 274-281.

Fjelltun, A.M., Henriksen, N., Norberg, A. & Gilje, F. (2009). Normann HK. Carers' and nurses' appraisals of needs of nursing home placement for frail older in Norway. Journal of Clinical Nursing, 18(22), 3079-3088.

Fonseca, A. M., Gonçalves, D. C., & Pereira, S. M. (2010). Working family carers in Portugal: between the duty and the burden of caring for old vulnerable people. International Journal of Palliative Nursing, 16(10), 476-480.

Ford, G. L. (2008). Life after placement: experiences of older rural caregivers after placing a family member into residential care. Rural Remote Health, 8(3), 1030.

Forslund, S., & Ohlsson, S. (2007). Nära slutet. Unpublished C-uppsats, Malmö: Malmö Högskola/Lärarutbildningen.

Fowler, C., & Fisher, C. L. (2009). Attitudes toward decision making and aging, and preparation for future care needs. Health Communication, 24(7), 619-630.

Gaugler, J. E., Mittelman, M. S., Hepburn, K., & Newcomer, R. (2009). Predictors of Change in Caregiver Burden and Depressive Symptoms Following Nursing Home Admission. Psychology and Aging, 24(2), 385-396.

Gaugler ,J.E. & Teaster, P. (2006). The family caregiving career: implications for community-based long-term care practice and policy. Journal of Aging & Social Policy, 18(3-4),141-154.

Ghiotti, C. (2009). The Dementia End of Life Care Project (DeLCaP): supporting families caring for people with late stage dementia at home. Dementia (14713012), 8(3), 349-361.

Giesbrecht, M., Crooks, V. A., & Williams, A. (2010). Perspectives from the frontlines: palliative care providers' expectations of Canada's compassionate care benefit programme. Health & Social Care in the Community, 18(6), 643-652.

Gordon, A. (2008). End of life decision making: a guide for caregivers. The Journal of Pastoral Care & Counseling : JPCC, 62(4), 375-378.

Grande, G. E., & Ewing, G. (2009). Informal carer bereavement outcome: relation to quality of end of life support and achievement of preferred place of death. Palliative Medicine, 23(3), 248-256.

Grande, G. E. & Ewing, G. (2009). Natl Forum Hosp H. Informal carer bereavement outcome: relation to quality of end of life support and achievement of preferred place of death. Palliative medicine, 23(3), 248-256.

Grande, G., Stajduhar, K., Aoun, S., Toye, C., Funk, L., Addington-Hall, J., et al. (2009). Supporting lay carers in end of life care: current gaps and future priorities. Palliative Medicine, 23(4), 339-344.

Green, Y. R. (2008). "You Know What To Do...You're A Social Worker!"A Daughter's Perspective Of End-Of-Life Caregiving. Reflections: Narratives of Professional Helping, 14(3), 20-28.

Grimby, A. (2002). Sorg och stöd bland äldre : Kunskapsöversikt och rekommendationer. Stockholm: Sveriges Pensinärsförbund SPF.

Grimby, A., Johansson, Å. K., Sundh, V. & Grimby, G. (2008). Walking habits of elderly widows. American Journal of Hospice & Palliative Medicine, 25(2), 81-87.

Grimby, A., Johansson, Å. K., Westerholm, B. (2009). GöteborgsPosten: Debatt. (Publ. 2009-10-30).

Grimby, A. ( 2010). Anhörigas utsatthet och omhändertagande vid olycka, svår sjukdom och sorg. En interventionsstudie på akutmottagning. Rapport från Akutmottagningen: Uppsala Akademiska Sjukhus.

Grimby, A, Johansson, Å. K. (2011). Handbok om sorg. Grafix/SU: Sahlgrenska. (Finns även på engelska och finska).

Grimby, A., et al. (2011). Sorg en grogrund för ohälsa - nationella riktlinjer behövs!  SLS Aktuellt, 2, 47-48. 

Grov, E. K., Dahl, A. A., Fosså, S. D., Wahl, A. K., & Moum, T. (2006, Sep). Global quality of life in primary caregivers of patients with cancer in palliative phase staying at home. Support Care Cancer, 14(9), 943-951.

Grov, E. K., Fosså, S. D., Sorebo, O., & Dahl, A. A. (2006, Nov). Primary caregivers of cancer patients in the palliative phase: A path analysis of variables influencing their burden. Social Science & Medicine, 63(9), 2429-2439.

Grov, E. K. & Eklund, M. L. (2008). Reactions of primary caregivers of frail older people and people with cancer in the palliative phase living at home. Journal of Advanced Nursing, 63(6), 576-585.

Gurner, U., Fastbom, J., & Österman, J. (2004). Vi har inte tid - ring akuten! : 24 fallstudier av multisjuka 75+ i Sigtuna - behov och konsumtion av sluten- och öppenvård, kommunal äldreomsorg samt av anhöriginsatser (Rapporter 1401-5129 ; 2004:1). Stockholm: Stiftelsen Stockholms läns äldrecentrum.

Hasson, F., Kernohan, W. G., McLaughlin, M., Waldron, M., McLaughlin, D., Chambers, H., et al. (2010). An exploration into the palliative and end-of-life experiences of carers of people with Parkinson's disease. Palliative Medicine, 24(7), 731-736.

Henriksson, A., & Andershed, B. (2007, Apr). A support group programme for relatives during the late palliative phase. International Journal of Palliative Nursing, 13(4), 175-183.

Holland, J. M., Currier, J. M. & Gallagher-Thompson, D. (2009). Outcomes From the Resources for Enhancing Alzheimer's Caregiver Health (REACH) Program for Bereaved Caregivers. Psychology and Aging, 24(1), 190-202.

Holley, C. K., & Mast, B. T. (2010). Predictors of anticipatory grief in dementia caregivers. Clinical Gerontologist, 33(3), 223-236.

Holmberg, L. (2006). Communication in action between family caregivers and a palliative home care team. Journal of Hospice & Palliative Nursing, 8(5), 276-287.

Holtslander, L., & Duggleby, W. (2008). An inner struggle for hope: insights from the diaries of bereaved family caregivers. International Journal of Palliative Nursing, 14(10), 478-484.

Holtslander, L. F., Duggleby, W., Williams, A. M., & Wright, K. E. (2005). The experience of hope for informal caregivers of palliative patients. Journal of Palliative Care, 21(4), 285-291.

Holtslander, L. F., & Duggleby, W. D. (2009). The hope experience of older bereaved women who cared for a spouse with terminal cancer. Qualitative Health Research, 19(3), 388-400.

Hudson, P., Quinn, K., Kristjanson, L., Thomas, T., Braithwaite, M., Fisher, J. et al. Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care. Palliative Medicine, 22(3), 270-280.

James, I., Andershed, B. & Ternestedt , B. M. (2009). The Encounter Between Informal and Professional Care at the End of Life. Quality Health Research, 19(2):258-271.

Johansson, Å. K., Grimby A. (2011). Anticipatory Grief Among Close Relatives of Patients at Hospice and Palliative Wards. American Journal of Hospice and Palliative Medicine.19 May 2011. (Epub ahead of print)

Jonsson, T. & Karlsson, I. (2006). Närståendes upplevelser av att överlämna omvårdnad av person med demens till professionella vårdare: en litteraturstudie [C-uppsats]. Luleå: Luleå tekniska universitet.

Julin, T. Nielsen, U. (2007). Palliativ vård : Anhörigvårdarens upplevelser av palliativ hemsjukvård [Kandidatuppsats]. Falun: Högskolan Dalarna..

Karlsson, J., & Lindbäck, K. (2007). Anhörigas upplevelser av att vårda sina närstående i livets slut i hemmet [elektronisk resurs] (C-uppsats 1402-1773). Luleå: Luleå Tekniska Universitet, Hälsovetenskap/Omvårdnad.

Keene, J.R. & Prokos, A. H. (2008). Widowhood and the end of spousal care-giving: relief or wear and tear? Ageing & Society, 28(4), 551-570.

Kvarnström, L. (2004). Jag är hans livslina! : Makars upplevelser av delaktighet i omvårdnaden på sjukhem. Stockholm: Kompetenscentrum inom Äldreomsorg och Äldrevård.

Kutner, J., Kilbourn, K. M., Costenaro, A., Lee, C. A., Nowels, C., Vancura, J. L., et al. (2009). Support needs of informal hospice caregivers: a qualitative study. Journal of Palliative Medicine, 12(12), 1101-1104.

Linderholm, M., & Friedrichsen, M. (2010). A desire to be seen: family caregivers' experiences of their caring role in palliative home care. Cancer Nursing, 33(1), 28-36.

Lindhardt, T., Bolmsjö, I. A., & Hallberg, I. R. (2006). Standing guard -- being a relative to a hospitalised, elderly person. Journal of Aging Studies, 20(2), 133-149.

Lundh, U., & Hellström, I. (2002). Samarbete i vården : Ett studiematerial för personal, anhöriga och vänner till personer med demens i särskilt boende. Tema äldre och åldrande, Linköping: Linköpings Universitet.

Lundh, U., Sandberg, J., & Nolan, M. (2000). 'I don't have any other choice': Spouses' experiences of placing a partner in a care home for older people in Sweden. Journal of Advanced Nursing, 32(5), 1178-1186.

Mattila, E. & Söderberg, A. (2008). Upplevelser av att vara anhörigvårdare i hemmet till en person i livets slut: en litteraturstudie [Kandidatuppsats]. Luleå: Luleå tekniska universitet.

McLennon, S. M., Habermann, B., & Davis, L. L. (2010). Deciding to institutionalize: why do family members cease caregiving at home? Journal of Neuroscience Nursing, 42(2), 95-103.

Melin-Johansson, C., Axelsson, B., & Danielson, E. (2007, Jul). Caregivers' perceptions about terminally ill family members' quality of life. European Journal  of Cancer Care, 16(4), 338-345.

Milberg, A. (2003). Family members' experience of palliative home care (Institutionen för medicin och hälsa, doktorsavhandling, 0345-0082 ; 821). Linköping: Linköpings Universitet.

Milberg, A., Olsson, E. C., Jakobsson, M., Olsson, M., & Friedrichsen, M. (2008, Jan). Family members' perceived needs for bereavement follow-up. Journal of Pain and Symptom Management, 35(1), 58-69.

Milberg, A., Rydstrand, K., Helander, L., & Friedrichsen, M. (2005, Winter). Participants' experiences of a support group intervention for family members during ongoing palliative home care. Journal of Palliative Care, 21(4), 277-284.

Milberg, A., & Strang, P. (2004, Sep). Exploring comprehensibility and manageability in palliative home care: An interview study of dying cancer patients' informal carers. Psycho-Oncology, 13(9), 605-618.

Munck, B., & Mårtensson, J. (2006). Att vara närståendevårdare inom palliativ vård i hemmet : Från kontroll till förlust av kontroll (Rapport, 1652-3954 ; 2006:6). Jönköping: Qulturum.

Munck, B., Fridlund, B. & Mårtensson, J. (2008). Next-of-kin caregivers in palliative home care -- from control to loss of control. Journal of Advanced Nursing, 64(6), 578-586.

Nilsson, S., & Larsson, Y. (2000). Projekt SIBOO : Stöd i bemötande, omvårdnad, omhändertagande : 1998 11 01-1999 12 31. Hässleholm: Geropsykiatriska mottagningen, Psykiatriska kliniken.

Oliver, D. P., & Demiris, G. (2010). Comparing face-to-face and telehealth-mediated delivery of a psychoeducational intervention: a case comparison study in hospice. Telemedicine Journal And E-Health: The Official Journal Of The American Telemedicine Association, 16(6), 751-753.

Orzeck, P. & Silverman, M. (2008). Recognizing Post-Caregiving as Part of the Caregiving Career: Implications for Practice. Journal of Social Work Practice, 22(2), 211-220.

Palm, I. & Friedrichsen, M. (2008). The lived experience of closeness in partners of cancer patients in the home care setting. International Journal of Palliative Nursing, 14(1), 6-13.

Parker Oliver, D., Demiris, G., Wittenberg-Lyles, E., Porock, D., Collier, J., & Arthur, A. (2010). Caregiver Participation in Hospice Interdisciplinary Team Meetings via Videophone Technology: A Pilot Study to Improve Pain Management. American Journal of Hospice & Palliative Medicine, 27(7), 465-473.

Pawlecki, J. B. (2010). End of life: a workplace issue. Health Affairs, 29(1), 141-146.

Payne, S. (2010). White Paper on improving support for family carers in palliative care: part 1. European Journal of Palliative Care, 17(5), 238-245.

Pearce, L. (2010). A carer's perspective. Nursing Standard, 24(25), 22-23.

Perry, B., Dalton, J. E., & Edwards, M. (2010). Family caregivers' compassion fatigue in long-term facilities. Nursing Older People, 22(4), 26-31.

Phillips, J. L., Davidson, P. M., Newton, P. J. & Digiacomo, M. (2008), Supporting patients and their caregivers after-hours at the end of life: the role of telephone support. Journal of Pain and Symptom Management, 36(1), 11-21.

Phillips, L. R. & Reed, P. G. (2009). Into the Abyss of Someone Else's Dying: The Voice of the End-of-Life Caregiver. Clinical Nursing Research, 18(1), 80-97.

Proot, I. M., Abu-Saad, H. H., Crebolder, H. F., Goldsteen, M., Luker, K. A., & Widdershoven, G. A. (2003). Vulnerability of family caregivers in terminal palliative care at home, balancing between burden. Scandinavian Journal of Caring Science, 17(2), 113-121.

Rydé, K. (2007). Gråtens betydelse för patienter och närstående i palliativ hemsjukvård [Lic.]. Norrköping: Linköpings universitet.

Rydé, K., Strang, P. & Friedrichsen, M. (2008). Crying in solitude or with someone for support and consolation -- experiences from family members in palliative home care. Cancer Nursing, 31(5),345-353.

Sahlberg-Blom, E., Ternestedt, B., & Johansson, J. (2000). Patient participation in decision making at the end of life as seen by a close relative. Nursing Ethics, 7(4), 296-313.

Sandberg, J. (2001). Placing a spouse in a care home for older people : (re)-constructing roles and relationships (Linköpings Universitet, doktorsavhandling, 0345-0082 ; 710). Linköping: Linköpings Universitet.

Sandberg, J., Lundh, U., & Nolan, M. (2002). Moving into a care home: The role of adult children in the placement process. International Journal of Nursing Studies, 39(3), 353-362.

Sandberg, J., Lundh, U., & Nolan, M. R. (2001). Placing a spouse in a care home: The importance of keeping. Journal of Clinical Nursing, 10(3), 406-416.

Sandberg, J., Nolan, M. R., & Lundh, U. (2002). 'entering a new world': Empathic awareness as the key to positive family/staff relationships in care homes. International Journal of Nursing Studies, 39(5), 507-515.

Sehrawat, S., Oliver, D. P, Wittenberg-Lyles, E. & Washington, K. (2008). Hospice social work and team involvement in caregiver pain assessment and intervention. Gerontologist, 48, 603-604.

Silfverberg, G. (2007). Hemmets vårdetik : Om vård av äldre i livets slutskede. Lund: Studentlitteratur.

Stajduhar, K. I., Nickel, D. D., Martin, W. L. & Funk, L. (2008). Situated/being situated: Client and co-worker roles of family caregivers in hospice palliative care. Social Science & Medicine, 67(11), 1789-1797.

Stajduhar, K., Funk, L., Jakobsson, E., & Öhlén, J. (2010). A critical analysis of health promotion and ‘empowerment’ in the context of palliative family care-giving. Nursing Inquiry, 17(3), 221-230.

Stoltz, P. (2006). Searching for the meaning of support in nursing : A study on support in family care of frail aged persons with examples from palliative care at home (Malmö Universitet, Fackulteten för Hälsa och Samhälle, doktorsavhandling , 1653-5383 ; 2006:2). Malmö: Malmö Universitet.

Stone, L. J., & Clements, J. A. (2009). The Effects of Nursing Home Placement on the Perceived Levels of Caregiver Burden. Journal of Gerontological Social Work, 52(3), 193-214.

Strang, V. R., Koop, P. M., Dupuis-Blanchard, S., Nordström, M., & Thompson, B. (2006, Feb). Family caregivers and transition to long-term care. Clinical Nursing Research, 15(1), 27-45.

Strid, A-L. (2007). Att arbeta i dödens närhet : rutiner och ritualer i äldreomsorgen. Lund: Socialhögskolan, Lunds universitet.

Svensson, G., & Malmberg, B. (2002). Särskilt boende för äldre under kortare tid (Underlag för experter). Stockholm : Socialstyrelsen.

Thielemann, P. A., & Conner, N. E. (2009). Social support as a mediator of depression in caregivers of patients with end-stage disease. Journal of Hospice & Palliative Nursing, 11(2), 82-90.

Townsend, A. L., Ishler, K. J., Shapiro, B. M., Pitorak, E. F., & Matthews, C. R. (2010). Levels, types, and predictors of family caregiver strain during hospice home care for an older adult. Journal of Social Work in End-of-Life & Palliative Care, 6(1-2), 51-72.

Ulstein, I. (2008). Familien til pasienter med demens. Omsorg: Nordisk Tidsskrift for Palliativ Medisin, 25(1), 29-33.

Whitaker, A. (2002). Att dela den gamlas sista tid : En studie av anhöriga på sjukhem (Sköndalsinstitutets arbetsrapportserie, 1402-277x ; 27). Sköndal: Sköndalsinstitutet.

Whitaker, A. (2002). Att dela den gamlas sista tid : En studie av anhöriga på sjukhem. In: Anhöriga och anhörigstöd i Stockholms län : Sammanfattning av ett forskningsprojekt (Vol. S. 43-50), Stockholm: Anhöriga och anhörigstöd i Stockholms län.

Whitaker, A. (2004). Livets sista boning : Anhörigskap, åldrande och död på sjukhem (Rapport i socialt arbete, 0281-6288 ; 108). Stockholm: Institutionen för socialt arbete, Socialhögskolan, Stockholms Universitet.

Whitaker, A. (2009). Åldrande, död och anhörigskap. Malmö: Gleerup.

Wilson, S. (2008). Lessons from My Father: My Mother's End-of-Life Caregiver. Reflections: Narratives of Professional Helping, 14(3), 68-73.

Winqvist, M. (2006).Sorg, oro och samvetsförebråelser : Tema : Att vara anhörig. Äldre i centrum (2), 22-23.

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